Condition: Lupus (Systemic Lupus or SLE)

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Members in the community range from 2 to 63 years old

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About Lupus (Systemic Lupus or SLE)

Lupus (also known as Systemic Lupus Erythematosus or SLE) is a chronic autoimmune condition that can affect any part of the body. It occurs when patients' immune systems attack their own bodies' cells and tissues, resulting in chronic inflammation and tissue damage.
Lupus most often causes inflammation in the nervous system, skin, joints, blood vessels, liver, kidneys and heart. The cause of lupus is unknown, and the condition varies in severity from patient to patient. Lupus presents in often unpredictable patters, with periods of activity (flares) alternating with symptom remission. There is currently no cure for lupus. Lupus occurs more often in women than men. There is no known cause for the condition, however some studies suggest it has a genetic link, while others have purposed environmental triggers including certain medication usage, extreme stress, exposure to UV light (sunlight), hormones, and infections from viruses or bacteria. Lupus is treated by controlling its symptoms with immunosuppresants and corticosteroids (Prednisone). Because lupus has a wide-range of symtoms and presents differently in patients, it can be misdiagnosed. While the exact number of people living with lupus is unknown because there have been no large-scale studies done in the U.S., it is known that more than 16,000 new cases of lupus are reported annually across the U.S.
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Read what others are saying about Lupus (Systemic Lupus or SLE)

before hydroxy it was just like somebody opened the tap and let all of it out... now I can hang pretty good with the meds, I do get tired but I don't start that way and I can be pretty active for a 49 year old, but sometimes I just feel tired and achey anyway, especially in a cold snap in the middle of warm weather.4/26/2012 at 12:30 PM
Was this review helpful? Yes
without the hydroxy it was a constant pain somewhere, mostly fleeting, like it would hurt a few minutes or maybe as much as 30 then stop or move, woke up nights feeling like stakes had been driven through palms of hands.... elbow joints burn if they stay bent more than about 45 mins... hydroxy not really stopping the elbow burn, but most other joint pain is mostly handled, but my symptoms are mostly mild at this point and my diagnosis is unspecificed but I am feeling like it will be lupus due to my symptoms.4/26/2012 at 12:28 PM
Was this review helpful? Yes
before taking hydroxy I could barely function, spent whole day moving from place to place and never getting basic tasks accomplished... leave bedroom headed to kitchen to write down shopping item... never make it to kitchen, instead distracted by something on table in dining room - so decided to handle that but then the cat comes by and meows so I pet the cat and then don't remember the dining room thing or the kitchen thing and that went on ALL day long... now with hydroxy my issue seems comparable to other perimenopausal nearly 50 year old women... I have not been diagnosed yet, am in unspecified but my symptoms seem to add up to lupus future.4/26/2012 at 12:26 PM
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generally have weakness at beginning of activity... was working as window cleaner and first 5 to 10 mins I was cleaning I was just muscle exhausted, but then it would ease up... now on hydrox and it does not occur very often4/26/2012 at 12:22 PM
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Muscle weakness causes that it could not get out of bed or keep objects heavy hands4/25/2012 at 04:04 PM
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V2012.311.925.327
Last updated on May 19 2012 at 01:57
Disclaimer: The list and ratings above are for informational purposes only, and is intended to supplement, not substitute for, the expertise and judgment of your physician, pharmacist or other healthcare professional. The goal of the information is to provide you with a comprehensive view of all available treatments, but should not be construed to indicate that use of any one treatment is safe, appropriate, or effective for you. Decisions about use of a new treatment, or about a change in your current treatment plan, should be in consultation with your doctor or other healthcare professional.