Condition: Proteus Syndrome

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Members in the community range from 2 to 7 years old

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About Proteus Syndrome

Proteus syndrome is a rare disorder characterized by overgrowth of various tissues of the body. The cause of the disorder is unknown. Disproportionate, asymmetric overgrowth occurs in a mosaic pattern (i.e., a random "patchy" pattern of affected and unaffected areas). Affected individuals may experience a wide variety of complications that may include progressive skeletal malformations, benign and malignant tumors, malformations of blood vessels (vascular malformations), bullous pulmonary disease, and certain skin lesions. In some cases, life-threatening conditions relating to abnormal blood clotting may develop including deep vein thrombosis and pulmonary embolism.

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Read what others are saying about Proteus Syndrome

upper arm causes pain to left shoulder and back I have dealt with this since I was around 10 years old it presented in my right leg and then in the left upper arm from the elbow up. it does change in size as my weight changes but never goes away 9/6/2013 at 04:26 PM
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V2012.311.925.327
Last updated on Jul 02 2018 at 11:31
Disclaimer: The list and ratings above are for informational purposes only, and is intended to supplement, not substitute for, the expertise and judgment of your physician, pharmacist or other healthcare professional. The goal of the information is to provide you with a comprehensive view of all available treatments, but should not be construed to indicate that use of any one treatment is safe, appropriate, or effective for you. Decisions about use of a new treatment, or about a change in your current treatment plan, should be in consultation with your doctor or other healthcare professional.